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Recovery highlights & Diaphragmatic endometriosis diagnosis


Nurse appointment

Day 20 – Recovery

I woke up early this morning for my nurse appointment. I forgot I had to walk and ran a little behind time! Oops! That’s Instagram for you (Must not fall into that trap!!)

I managed to make it just on time (only to find nurse was 30mins behind!) I was a little breathless and diaphragm was aching. The nurse was happy with my wounds and said they were healing perfectly! No sign of infection. PHEW! I stopped off to get my Oat Latte from Caffè Nero which was lovely and got two stamps for using my Keep cup! (Small gains)! The blossom trees are all out in Carshalton, Wallington! They really are beautiful 🙂 Two of our family friends came to meet me for a walk we walked trialed a new walk through a new housing development to a local park for a drink. I had my vegan turnover from Coughlans and then walked back up a lovely track on the way home! I absolutely love that walk (my fave). It cheered me up to have company and people to talk to. So in total 7 miles for me today! A new record. I look so pale in that picture though 😦 I came back and had some strawberries in the garden and attempted to complete my heart colouring in my mindful colouring book that i'd started yesterday! My Spiroball was measuring at 2700 – 3000ml.

I laid in the garden reading my book until NBH came home it was peaceful for a while when the kiddies weren’t home 😂

I made my first terrarium which was one of my recovery goals. With pink and grey sand/marble chippings to match living room. It was a really good day but now I’m pretty shattered!

Off to bed 8:50pm!

LBH x




Suspected post surgery lung collapse

Recovery – Day 24

Today I woke up at 10 to 9am felt sleepy! I made a cuppa and a butter bean, avocado, pesto and basil on sour dough breakkie!

I finally met my savings goal in £5 notes and paid it in at the bank. This is going into my bond account for the future. Tick another goal off of my post surgery list! I walked to the doctors (I was a little out of breath and sore) the doctor listened to my chest and thinks my lung has collapsed slightly. He has signed me off for another 2 weeks. I walked 3.48 miles and hit 2500ml on the Spiroball which is a little less than it has been. I got home and felt completely shattered. I could hardly keep my eyes open but yet couldn’t sleep 😴

I watched Escape to the chateau DIY which was good and did the washing and hung out the washing to dry.

Nick came home and we had a yummy aubergine and chickpea bake.

Off to bed early as usual!

LBH x

A month since surgery

Day 28 – Recovery

It’s been one month exactly since my surgery. Although I feel I have come a long way I seem to have slipped back a little too. I met my best friend and her daughter for a coffee in Cafe Nero! My friends little girl was so entertaining as usual and is a joy to be around. It was so good to see my friend and get back to how we always used to be.

I walked both ways (around 2.2miles). I even made an effort with my makeup today as I haven’t been wearing any.

I had 2 oat lattes whilst in Caffè Nero and I think with the Tramadol I felt a bit wired when I got home I was dizzy and a little shaky and had to lie down for a bit. I also received some of my skincare order (such good value from All Beauty! I was so impressed). My friend and his wife came to visit in the afternoon and it was so lovely to see them as it has been 3 years since we saw them 😦 life just got in the way which isn’t a good enough excuse. We had some tea and cakes and then went for a lovely long walk past the horse riding school and to the bigger local park, then back past the wood cladded houses and home again. It was lovely and really cheered me up! I walked 5.2miles in total a new record since talking a downward turn and my Spiroball readings are back up to 3000ml which is a relief. NBH and I couldn’t sleep tonight so are both still up past midnight which is so rare these days!!

LBH x


30 Days since surgery

Day 30 – Recovery

I can’t believe it’s been 30 days since my operation. I definitely thought I’d be much better by now. I’m a little disappointed that I seem to be taking backward steps.

I woke up today and felt pretty rough and achy. NBH had arranged to get the recovery guy out to look at my car and he jump started it. I had to take it to Halfords which was scary as I’m not meant to drive and it’s the first time I have driven since my op. I managed it but a “alternator fail, battery not charging” light came up on the dash.

I got an Uber home and relaxed for the rest of the day no walk for me today. I caught up with my programmes sorted out one of my present wrapping drawer. I sorted out my foreign currency and my button box. All of the random things you never have time to do but don't take too much physical effort!

I called the ward at the hospital to ask a nurse for advice on my pain, breathing and rib not feeling right. They said they would speak to my consultant. Subsequently my appointment was moved forward to tomorrow evening.


I spent some time organising my friend from the US's visit to the UK and booked hop on hop off bus tickets. I really enjoyed organising it! It was fun.

Tomorrow I have a beauty therapy appointment which will be good as my grooming has been awful since the operation. I am also trying my first facial treatment so that should be interesting!


LBH x


Diaphragmatic Endometriosis diagnosis

Day 31 – Recovery

I got an Uber to my appointment and had my eye lashes tinted and my eyebrows shaped and had my first facial which was good. Exfoliates, brightens, peels and cleanses. Just what I needed!

I walked back from my appointment and had lunch from M&S. NBH and I went for a walk down my favourite walking track and then took a cab to the hospital for my consultant appointment. I managed 4.5 miles walking in total today and my Spiroball reading was quite low at 2000ml-2250ml. My lung was fine and the x Ray was ok. My consultant explained that the pains and breathing is just usual recovery and that it would take time. My pathology came back and I have endometriosis in my diaphragm which is rare and the first time he has seen it. He referred me to a gynaecologist so once I’m recovered I will go to see him to see what the next steps will be.

I’m not sure it’s actually sunk in yet. I am trying to remain brave and positive and just deal with one thing at a time.

LBH x




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Hi, thanks for stopping by!

Thanks so much for taking time out to read my story. I share my story and my journey on Instagram to build awareness about Chronic Illness and endometriosis.

 

Diagnosis of thoracic endometriosis has been a life changing experience with very little information out there.

 

Building a community of people who share their own experiences has made a huge difference to me and to others dealing with similar symptoms.

 

The idea was to support others on their path to diagnosis and treatment with shared experience. 

Look after yourself!

LBH x 

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